Patient of the Week – Helen Tully

By St. Jude/PIO
Sept. 10, 2009

Helen Tully
2 years old

Diagnosis:

Helen was discovered to have rhabdomyosarcoma in February 2008.

Helen’s Story:

When Helen was born in 2007 in Latvia, she was a happy, healthy baby. Just eight months later, in February 2008, her mother, Andra, noticed a bruise on one of Helen’s buttocks. Concerned, she took her daughter to the pediatrician, who dismissed the bruise as nothing more than the result of Helen rolling over on a toy. But when a pea-like lump appeared overnight, and the bruise continued to spread, Andra took Helen to another doctor. He performed an ultrasound, and the results it revealed were devastating. Baby Helen had tumors on her pelvis. A follow-up MRI confirmed the presence of tumors, and surgery was scheduled for a week later.

Andra e-mailed a family friend in the United States to explain that she might be hard to reach for awhile because Helen was ill. The friend requested that she e-mail him Helen’s scans so that he could share them with friends of his who were physicians. He called Andra back quickly, and his advice was alarming. The physicians had reviewed the scans and felt that surgery would be dangerous. They recommended that Andra and her husband, John, bring little Helen to the U.S. for treatment, and one of the hospitals they recommended was St. Jude Children’s Research Hospital.

Andra and John searched online for the best options for Helen’s long-term treatment. St. Jude kept coming up, and since John had family in the area, they decided that St. Jude might indeed be the best place for their baby. Their doctor provided a referral, and the next few days were a whirlwind as the family prepared to travel to Memphis.

At St. Jude:

At St. Jude, doctors determined that Helen suffered from rhabdomyosarcoma, the most common, aggressive soft tissue tumor in children. Because of the size of Helen’s tumor, she could not undergo surgery right away. Doctors started her on a 54-week chemotherapy treatment plan. After her first two rounds of chemotherapy, Helen’s tumor had shrunken about 60 percent, much to her family’s delight. Helen later underwent surgery to remove the tumor, and radiation. Today, her scans show no evidence of disease.

“If we had not come to St. Jude, I don’t think Helen would have celebrated her first birthday,” Andra said. “In Latvia, we don’t have the medicine they have here. At St. Jude, the doctors and nurses are so wonderful, they care so much. We know Helen is getting the best possible care. Whatever the children want or need, whether it is ice cream or an MRI, they get. It’s amazing.” Helen is finished with treatment and returns to St. Jude every three months for checkups. She loves music, dancing and playing with her older brother, Martin.

Source: St. Jude

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